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Research Opportunities

HD/JHD Patients & Caregivers Study

A Speech-Language Pathology graduate student (Paige Wikman) and her professor (Dr. Therese O’Neil-Pirozzi) at Northeastern University in Boston are doing an IRB-approved study to explore perspectives of individuals with Huntington’s Disease and their caregivers in areas of quality of life and eating/swallowing (link to study flyer). They are interested in how self-reports of individuals with Huntington’s Disease compare to those of their caregivers in these areas.

If you have a medical diagnosis of Huntington’s Disease, you and a caregiver who knows you well, may be eligible to participate in this 20-30 minute-long study. If you are interested in participating or would like to know more about this study, click the button below to schedule a time with Paige or email her at ( for more information.

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