Research & News

Stay informed on the latest advancements in Huntington’s Disease and Juvenile HD research. Below are trusted organizations, journals, and platforms sharing science-backed updates, clinical trial opportunities, and community stories.

 

🔗 Click the organization names to visit their websites.

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🧬 Trusted HD Research & Science News

• HDBuzzA global platform sharing plain-language updates on the latest Huntington’s research, written by HD scientists and clinicians.
  🌍 International | ✉️ info@hdbuzz.net

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• CHDI Foundation
  A nonprofit biomedical research organization solely dedicated to developing therapies that slow the progression of Huntington’s Disease.
  📍 New York, NY | ✉️ info@chdifoundation.org | 📞 212-239-9300

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• Hereditary Disease Foundation (HDF)
  Supports research toward curing HD and other genetic disorders. Regularly funds grants and publishes scientific breakthroughs.
  📍 New York, NY | ✉️ cures@hdfoundation.org | 📞 212-928-2121

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• HD-CARE (UC Irvine)
  Supports clinical care and scientific research into HD at the University of California, Irvine.
  📍 California | ✉️ hdcareorg@gmail.com | 📞 949-824-3061

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• EHDN (European Huntington’s Disease Network)
  Facilitates clinical research and trial access across Europe. Also hosts news and conference updates.
  📍 Ulm, Germany | ✉️ info@euro-hd.net

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• Huntington Study Group (HSG)
  A global network of researchers and clinicians committed to conducting clinical trials and advancing treatments for HD.
  📍 Rochester, NY | ✉️ info@hsglimited.org | 📞 800-487-7671

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• Stanford HOPES
  Student-led research outreach project from Stanford University, designed to make HD science accessible to all readers.