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HD Resource Hub

This hub is your gateway to trusted Huntington’s Disease organizations and support systems across the globe. Whether you're newly navigating an HD diagnosis, caring for a loved one, or looking to connect with advocates in your region, these organizations are here to help. From Australia to Europe to the Americas, explore the community of global allies working together to provide education, support, and hope for those affected by HD and Juvenile HD.

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🔗 Click the organization names below to visit their websites.

🇺🇸 North America

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  • Help 4 HD International
    Multimedia advocacy, education, and clinical trial awareness for HD and JHD.
    📧 katie@help4hd.org | 📞 916-698-0462 | 📍 Elk Grove, CA

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  • HD-CARE (UC Irvine)
    Supports HD clinical research and care through UC Irvine’s medical center.
    📧 hdcareorg@gmail.com | 📞 949-824-3061

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  • HD Reach
    Provides social and medical support for those affected by HD in North Carolina.
    📧 info@hdreach.org | 📞 919-803-8128 | 📍 Raleigh, NC

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  • HD Drug Works
    A resource for exploring treatment options for HD.
     

  • Hereditary Disease Foundation (HDF)
    Funds biomedical research aimed at curing HD and other genetic diseases.
    📧 cures@hdfoundation.org | 📞 212-928-2121 | 📍 New York, NY

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  • Huntington Society of Canada
    Supports HD research, services, and advocacy across Canada.
    📧 info@huntingtonsociety.ca | 📞 800-998-7398 | 📍 Kitchener, ON

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  • NJ Cure HD
    A statewide network supporting HD families and research in New Jersey.
    📧 njcurehd@gmail.com | 📞 732-887-3751

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  • Philly Cure HD
    Serves the local HD community in Philadelphia through education and advocacy.
    📧 info@phillycurehd.org | 📞 215-219-3521

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  • HD Support and Care Network
    Connects HD families with care and support services in California.
    📧 melissa@hdscn.org | 📞 805-354-0708

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  • Stanford HOPES
    Student-led HD research education project making scientific info accessible to the public.

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  • WeHaveAFace
    Global nonprofit raising awareness and support for JHD and HD through multimedia, outreach, and community chapters.

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  • NINDS (NIH)
    U.S. government portal offering medical research and information on HD and neurological conditions.
    📞 800-352-9424

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🇪🇺 Europe & UK

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  • Movement Disorder Society
    An international medical network supporting research and education on HD and related disorders.
    📧 info@movementdisorders.org | 📞 414-276-2145

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🇦🇺 Australia

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  • Huntington’s NSW & ACT
    Regional chapter serving New South Wales and the Australian Capital Territory.
    📧 info@huntingtonsnsw.org.au | 📞 (02) 9874 9777

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  • Huntington’s Queensland
    Education, care, and support services for Queensland’s HD community.
    📧 admin@huntingtonsqld.org.au | 📞 (07) 3391 8833

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  • Huntington’s Victoria
    Offers services and advocacy for people with HD across Victoria.
    📧 info@huntingtonsvic.org.au | 📞 (03) 9818 6333

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  • Huntington’s WA
    Western Australia branch supporting individuals and families.
    📧 admin@huntingtonswa.org.au | 📞 (08) 6457 7599

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💬 Youth, Research & Global Advocacy

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  • HDBuzz Reliable, accessible HD research news written by scientists for the global community.

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  • Gene Veritas Blog  Personal blog sharing HD research news and the writer’s journey as someone at risk for HD.

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