Shelby is a recent graduate from Western Michigan University with a degree in Public Realtions and a minor in Event Management. She made the decision to get tested for HD after her grandfather, father, and 13-year-old sister were diagnosed between 2013 and 2016. She was the most recent to be diagnosed in 2017, but currently has no symptoms. A singer/songwriter, she spent two years at Belmont University in Nashville, TN, before coming home to finish her degree at home after being diagnosed. Her song, "Champion" inspired by Rocky Balboa influenced Champions for HD. She continues to share her story through her nonprofit, music, and her role as a titleholder in the Miss America Organization.
Tracy, Shelby's mother, has been an active participant in HD fundraisers ever since her daughter's diagnosis. She has been working at Paw Paw Public Schools for 13 years as both a teacher and principal. She is a graduate from Western Michigan University with a Master's degree.
Dan owns South Haven Brewpub. He and Shelby met in 2015 when he began hiring her to perform at the brewpub. After her diagnosis, Dan came to her with the idea to start a nonprofit, and has since played an integral role in supporting and funding CHD. He has held multiple benefits with her at the brewpub since then. When he is not working at the brewpub, he works as a nurse.
Co-Founder; Vice Pesident
Sarah is a senior at Grand Valley State University and will be graduating with her degree in Advertising and PR this spring. She is a competitor in the Miss America Organization with Shelby and was even first-runner up at Miss Michigan this past June. While she has no personal connection to Huntington's Disease, as she's watched Shelby passionately share her story, she decided to join CHD's board for Communications and PR.