About Us

Together we are fighting HD one story at a time.

Champions for HD: Est. April, 2018

*Official 501(c)(3) nonprofit.

Champions for HD is a non-profit in the fight against Huntington's Disease. Founded in 2018 by Shelby Lentz, who drew inspiration from the Rocky Balboa movies, this non-profit aims to not only fight for a cure for HD, but to help those who are struggling with this disease with financial aid.

Huntington's Disease is a terminal, genetic disease that causes the brain to deteriorate over time, making physical and cognitive tasks--such as eating, walking, talking, processing-- almost entirely impossible. HD is said to be equivalent to having ALS, Alzheimer's, and Parkinson's simultaneously. Every parent with the disease has a 50/50 chance of passing it on to their children.

Founder and President, Shelby Lentz, has made it her mission to not only further HD research funding, but help families like her own that are struggling. After her grandfather, father, and 12-year old sister (diagnosed with Juvenile HD) were diagnosed, she decided to get tested herself. Also receiving a positive diagnosis, she has watched HD take so much from her family. After watching her father struggle for over two years to receive disability and her sister suffer with JHD in the hospital, and the medical bills taking no mercy, she created Champions for HD to assist other families who are struggling with the mental, emotional, and financial burden HD brings while also funding and furthering HD research.